EDUCATION  +  RESEARCH  +  SUPPORT

MD Anderson IBC treatment algorithm

Education, General, Patient Resources

We are excited to see that MD Anderson announced yesterday their newly approved IBC treatment algorithm. Previously IBC was a single flow chart within the general breast cancer algorithm, but due to the expertise derived from over 10 years of being the world’s...

The BRCA Gene and Mutations

Education, Patient Resources

The BRCA Gene and Mutations Everyone has the BRCA gene. The BRCA gene naturally suppresses tumors in our bodies. Some people have a mutation, or change, of this gene – meaning their bodies may be unable to fend off potential tumors – which leaves them at a...

Open letter to all who have, had or knows someone with Inflammatory Breast Cancer

Education, General

Open letter to all who have, had or knows someone with Inflammatory breast cancer. Small vent warning, possible trigger alert…sorry, not sorry. for sharing a post I shared in the IBC support group that I run. I saw a comment tonight and it just haunts me....

A Guide On Peer-To-Peer Donations

Education, General

There are some popular 3rd party platforms online, making it fast and easy to raise funds for causes. Here is a brief overview of a few things to consider when thinking of using an online funding site, for a personal need or charity, often commonly called “peer to...

Frequently Asked Questions (FAQs)

Education, General, Patient Resources, Physician Resources

About the Disease [qa cat=”About the Disease”] Doctors and Specialists [qa cat=”Doctors and Specialists”] Support and Assistance [qa cat=”Support and...

IBC Survivor’s Fight to Raise Awareness

Education, General

Terry Arnold was diagnosed with a right inflammatory breast cancer (IBC) in August 2007 and a left contralateral tumor soon after. She underwent weeks of chemotherapy, radiation treatment and eventually a double mastectomy. She completed treatment in June 2008....