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the ibc network foundation

EDUCATION  +  RESEARCH  +  SUPPORT

No Lump… STILL Cancer

Over $1.6 million donated to inflammatory breast cancer research by The IBC Network Foundation.

But we do more than just fund research.

We attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.  However, we want you to also see we are intensely focused on funding high quality research, because we feel research matters.

What is IBC?

A working definition: Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.

This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.

OUR MISSION:

  • To fund research regarding Inflammatory Breast Cancer.
  • To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.

 

It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.

Symptoms, Facts & Statistics

Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.

Treatment Centers

Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.

IBC Network Online Community

The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer

IBC Learning Academy

The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying. 

Introducing the UPDATED
IBC Network Foundation App!

This informative and interactive app has been updated and is available to anyone wanting to know more about Inflammatory Breast Cancer.

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Symptons, diagnosis, and treatment of IBC

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Latest inflammatory breast cancer news

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Information and updates on clinical trials

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Updated events at your fingertips

inflammatory breast cancer app
IBC app
IBC educational campaign twitter post

ARTICLES

How can I be 31, pregnant, and have cancer?

How can I be 31, pregnant, and have cancer?

Guest blog by Deanna: I was originally misdiagnosed with Mastitis during my pregnancy.  I knew I was BRCA+ from the time I was 24.  My mother was diagnosed with breast cancer at 38, and my older sister was also BRCA+. I had the regular screenings (MRI, MAMMO) but...

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TODAY I WALK

TODAY I WALK

I am so happy I was able to walk in Dana’s Farber’s Jimmy Walk to raise funds for Team IBC. They are still accepting donations until the end of the month. On the Team IBC page it says 100% of funds raised through Team IBC will support IBC research. Read below to see...

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Advocates can make an impact in non fundraising ways.

Advocates can make an impact in non fundraising ways.

I wanted to thank the Morgan Welch inflammatory breast cancer research program and clinic for mentioning me and their Illuminating Hope newsletter. There's a bit of a back story here, and I owe it all to a baby. My oldest daughter had a baby and we were in New York...

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A few ways we have helped…

“Education from the IBC Network Foundation, I think was truly part of me becoming, finally, NED through treatment.”

– Eva

“When I was first diagnosed, they told me that they would never call me cured, but that it would just be called NED. Somehow within the past couple of years, it’s changed. They told me that after 7 years, they would consider me cured. Times are changing, things are changing. There is hope.”

Chrisanne

“…having the knowledge and evidence based materials at my fingertips has really been beneficial in the steering of my treatment. My oncologist, my team, has been fantastic at following that evidence base, but actually knowing what I should be expecting and knowing how to advocate for myself has been the most important piece of my treatment plan and The IBC Network Foundation has really given me two legs to stand on when it comes to being in charge of my own treatment plan”

– Kristin

“…I’m very appreciative of The IBC Network and Terry Arnold, and this whole community. We are truly better together. It’s amazing to have a network of people to lean on.”

– Julie

“The IBC Network Foundation made a huge difference for me. They helped me find the right treatment after the initial hospital did not want to do radiation and surgery since I was stage 4 already. I had surgery and radiation, finished in July 2019, and have been NED since.”

– Jill

“I would not have been diagnosed as quickly as I was if I hadn’t had the information and resources that The IBC Network provides us on their website and their app.”

– Erin

“I’ve gotten a lot of support and questions answered from The IBC Network Foundation. If it wasn’t for them, I probably wouldn’t have been connected to MD Anderson, I would not have been able to take part in the clinical trial that I was able to take part in. So I’m very thankful. We are both doing amazing.”

– Kelly

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