EDUCATION + RESEARCH + SUPPORT
No Lump… STILL Cancer
Over $1.8 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
From Awareness to Action:
Invest in Inflammatory Breast Cancer Research to Save Lives.
Raising awareness is just the first step; the urgent need for focused research is paramount to improving early diagnosis, treatment options, and survival rates. By investing in IBC research, we can develop targeted therapies, improve patient outcomes, and ultimately save lives.
Now is the time to turn awareness into action—supporting research is key to combating this devastating disease.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
IBC Network Online Community
The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer.
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
My Social Security Story
My name is Olivia, and on November 30, 2020, at 27 years old, I was diagnosed with HER2+ stage 4 inflammatory breast cancer (IBC) with bone metastasis—just after having my baby boy. Soon after starting treatment, I learned that IBC qualifies for Social Security...
Finding Meaning in Hospitality: Reflections from a Retreat Talk
(Terry Arnold, Sunday, January 19, 2025) Happy Sunday, everyone! I’d like to share an incredible experience I had recently that was both exciting and meaningful. It all began back in October when I gave a series of talks for a group called Cross Creek West, the same...
If I was in charge of October…
Expanding Breast Cancer Awareness: Addressing Gaps in Education Traditional breast cancer awareness campaigns have undoubtedly saved lives. For instance, many women have credited a campaign they saw in October with teaching them how to perform a self-exam, which led...
