EDUCATION + RESEARCH + SUPPORT
No Lump… STILL Cancer
Over $1.6 million donated to inflammatory breast cancer research by The IBC Network Foundation.
But we do more than just fund research.
We attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time. However, we want you to also see we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
A working definition: Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
IBC Network Online Community
The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer
IBC Learning Academy
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
Introducing the UPDATED
IBC Network Foundation App!
This informative and interactive app has been updated and is available to anyone wanting to know more about Inflammatory Breast Cancer.
Symptons, diagnosis, and treatment of IBC
Latest inflammatory breast cancer news
Information and updates on clinical trials
Updated events at your fingertips
ARTICLES
How can I be 31, pregnant, and have cancer?
Guest blog by Deanna: I was originally misdiagnosed with Mastitis during my pregnancy. I knew I was BRCA+ from the time I was 24. My mother was diagnosed with breast cancer at 38, and my older sister was also BRCA+. I had the regular screenings (MRI, MAMMO) but...
TODAY I WALK
I am so happy I was able to walk in Dana’s Farber’s Jimmy Walk to raise funds for Team IBC. They are still accepting donations until the end of the month. On the Team IBC page it says 100% of funds raised through Team IBC will support IBC research. Read below to see...
Advocates can make an impact in non fundraising ways.
I wanted to thank the Morgan Welch inflammatory breast cancer research program and clinic for mentioning me and their Illuminating Hope newsletter. There's a bit of a back story here, and I owe it all to a baby. My oldest daughter had a baby and we were in New York...
