the IBC network foundation

EDUCATION  +  RESEARCH  +  SUPPORT

No Lump… STILL Cancer

Over $1.7 million donated to inflammatory breast cancer research by The IBC Network Foundation.

We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time. 

However, we are intensely focused on funding high quality research, because we feel research matters.

What is IBC?

Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.

This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.

OUR MISSION:

  • To fund research regarding Inflammatory Breast Cancer.
  • To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.

 

It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.

Registration is now open for the 2024 ULTIMATE IBC MEET UP

2024 Ultimate IBC Meet Up

The Ultimate IBC Meet Up is for anyone impacted by inflammatory breast cancer. Patients, Survivors, Caregivers, Advocates, and anyone interested in learning more about IBC.

The meet up sessions will include education regarding IBC, personal physical and mental health, motivational speakers, and our Sunday “Hug”, which is where we gather for a grab and go breakfast, or relax and enjoy each other’s company for a last few minutes.

Symptoms, Facts & Statistics

Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.

Treatment Centers

Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.

IBC Network Online Community

The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer.

IBC LEARNING ACADEMY

The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying. 

TALK IBC PODCAST

The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests. 

Walking on Quicksand Magazine

Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.

The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.

The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *

breast cancer grants

ARTICLES

Vienna’s Story of Hope

Vienna’s Story of Hope

Age Diagnosed With IBC: 34 Year of Diagnosis: 2022 Current Status: NED Brief Story: In July 2022, I discovered a lump that seemed like it came out of nowhere. I scheduled a routine checkup with my ob/gyn in a couple weeks not thinking it would be anything serious. By...

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Shareen’s Story of Hope

Shareen’s Story of Hope

At the age of 42, in 2023, Shareen received the life-altering diagnosis of Inflammatory Breast Cancer (IBC), here is her story: Four weeks into a new job, I'd been having pains in my breast which I put down to perimenopause symptoms. After my right breast began to...

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Pamela’s Story of Hope

Pamela’s Story of Hope

Guest blog by Pamela Collins My name is Pamela Collins. I live outside Springfield, Missouri, in a rural area close to a major city. In 2013, I was diagnosed with Inflammatory Breast Cancer. I am sharing my story of hope. I was 53 years old at diagnosis, in good...

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A few ways we have helped…

“Education from the IBC Network Foundation, I think was truly part of me becoming, finally, NED through treatment.”

– Eva

“When I was first diagnosed, they told me that they would never call me cured, but that it would just be called NED. Somehow within the past couple of years, it’s changed. They told me that after 7 years, they would consider me cured. Times are changing, things are changing. There is hope.”

Chrisanne

“…having the knowledge and evidence based materials at my fingertips has really been beneficial in the steering of my treatment. My oncologist, my team, has been fantastic at following that evidence base, but actually knowing what I should be expecting and knowing how to advocate for myself has been the most important piece of my treatment plan and The IBC Network Foundation has really given me two legs to stand on when it comes to being in charge of my own treatment plan”

– Kristin

“…I’m very appreciative of The IBC Network and Terry Arnold, and this whole community. We are truly better together. It’s amazing to have a network of people to lean on.”

– Julie

“The IBC Network Foundation made a huge difference for me. They helped me find the right treatment after the initial hospital did not want to do radiation and surgery since I was stage 4 already. I had surgery and radiation, finished in July 2019, and have been NED since.”

– Jill

“I would not have been diagnosed as quickly as I was if I hadn’t had the information and resources that The IBC Network provides us on their website and their app.”

– Erin

“I’ve gotten a lot of support and questions answered from The IBC Network Foundation. If it wasn’t for them, I probably wouldn’t have been connected to MD Anderson, I would not have been able to take part in the clinical trial that I was able to take part in. So I’m very thankful. We are both doing amazing.”

– Kelly

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