I receive messages like this every single day, and it breaks my heart. Often, we—along with well-meaning doctors—search for reasonable explanations for why a breast is swollen, even if our intentions aren’t harmful.

For cat owners, it’s not uncommon to get scratched. You might bump your breast while doing housework, lifting a child, or even stopping short in your car when the seatbelt tugs. In these everyday moments, it’s easy to think, “Hmm, maybe that’s why my breast is swollen today.”

When I was first (and finally!) diagnosed with inflammatory breast cancer, they were so excited to realize what I had, they never even checked my other breast. It wasn’t until my second opinion at MD Anderson that a more thorough examination revealed cancer in both breasts. I often encourage others to think about getting comprehensive exams. Just like in a car accident, where you might sustain multiple injuries, it’s crucial not to focus on just one issue.

I’m not blaming anyone—this isn’t about pointing fingers. It’s clear that the doctors were trying to help. However, if you experience symptoms of inflammatory breast cancer for more than a few days, insist that your doctor rules it out. Don’t settle for a course of antibiotics that stretches over three weeks. This approach is not in line with national cancer institute recommendations, and we need to advocate for a stronger standard of care.

Did you know there’s currently no national standard of care for inflammatory breast cancer? MD Anderson is working on an algorithm to establish one, but we still have a long way to go. This is where I need your help. Talk to your friends, share information, and help raise awareness. Together, we can reduce the number of messages like the ones I receive. God bless those who are facing delays in diagnosis; it makes their fight significantly harder.

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Hope always,

Terry

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