A Letter to My Kids

General

Terry Arnold, Founder of The IBC Network Foundation, wrote a note to her kids that we wanted to share here: I wanted to send this out because it’s almost time for open enrollment. You may have an option to get an additional cancer policy on top of your medical...

Dealing With Holiday Stress and IBC

General, Guest Blog

Guest Blog by Martha Van Dam, MS, LMHC, NCC Holidays can be times of excitement and happiness, but they can also be times of extra stress and pressure, especially when dealing with cancer or recovering from cancer. Please take care of yourself during this busy time...

Simple Mastectomy or Modified Radical Mastectomy for Stage 4 IBC

General, Patient Resources, Physician Resources

There is ongoing discussion regarding the role of modified radical mastectomy (MRM) in patients with de novo stage IV inflammatory breast cancer (IBC). Terry Arnold, founder of The IBC Network Foundation reached out to Dr. Anthony Lucci, the leading IBC expert on...

SPIN For a Cause

Events, General

UPDATE: The event was well attended and raised over $12,000! In honor of Deanna Ireland (Balerno), sister of AIG employee Chelsea Thorpe and dear friend to many, the family of Deanna has created an event that will help fund inflammatory breast cancer research. SPIN...

Educational and Advocate Opportunities in December 2022

Education, General

I want to share an educational opportunity. There is an international IBC consortium that meets every other year. This year the conference is to be hosted by MD Anderson in Houston, Texas in early December, just prior to the San Antonio Breast Cancer Symposium,...

Marissa’s Story

General, Stories of Hope - App

Age Diagnosed with IBC: 27 Year of Diagnosis: 2015 Current Status: NED/Remission I was diagnosed 5 weeks after giving birth to my daughter. My cancer presented itself 3 weeks prior to delivery. I had what looked like two bug bites on my left breast that hurt very bad...