Because of Her

General

Updated January 21, 2013 – “The IBC world suffered a great loss today. Lori Grennan, the inspiration for much of our work, has passed away. Peace to her family and all who loved her. We will continue on, in her honor, educating and funding IBC research.”...

The Death of Research As We Know It?

General

The following article was published in Breast Investigators in January of 2013.  However, I wanted to post it on our blog after listening to comments by a speaker at the MD Anderson Network conference today.  The speaker was a Pulitzer prize winner, Siddhartha...

UK power!

General

I could just cry I am so moved… Recently some of the IBC sisters in the UK got together for tea with one US based IBC survivor, (who is British).  At the tea, it was discussed how much they wish to do something for the improvement of IBC care for their sisters. ...

How you can help us!

General, Patient Resources

Are you a To-Do List person?  Personally I am more of a “long term goal, how in the heck do I get there” person.  We are growing and we need help, so I have compiled a “To Do List” of some simple but important tasks to help us hit some of the goals for The IBC Network...

Tess, Logo, & Breaking the Silence

General

Someone asked me why our logo is a puff, and not a ribbon.  I realized I had not written about our choices in our imagery in awhile.  Why we use a webby puff and not a ribbon, the  “Silence is Killing Me” ad campaign, our “no lump still...

International expert panel on IBC

General, Physician Resources

From Dr. Ueno, Excutive Director of the Morgan Welch Inflammatory Breast Cancer Program and Clinic International expert panel on inflammatory breast cancer: consensus statement for standardized diagnosis and treatment. Five simple points added for IBC diagnostic...