EDUCATION + RESEARCH + SUPPORT
No Lump… Still Cancer
Over $1.9 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
REGISTRATION IS NOW OPEN!
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
Shop the IBC Network Store and make a difference!
Every purchase supports inflammatory breast cancer research, advocacy, and education. Your shopping helps fuel hope, fund progress, and move us closer to a future where IBC is a disease of the past. Thank you for supporting the mission!
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
Guest Post from a volunteer at SABCS Clare Cory
Guest Post from a volunteer at SABCS Clare Cory Clare, with her doctor, Bora Lim, now bonding over science and helping others. Also pictured is Liz Tobin and Terry Arnold[/caption] Inspiration, collaboration and application flourished at the 2018 San Antonio Breast...
End of Year 2018
The IBC Network Foundation has come a long way since it started down the path of inflammatory breast cancer (IBC) advocacy. In our early days, it was hard not to be discouraged. I was often met with blank stares and confusion at the mention of IBC because many felt...
Letter for Insurance Coverage Request When Out of Network
If you have issues getting care out of network, and wish to send a copy of this letter to your insurance company, we hope it will start a conversation to help bridge a gap in care. We have listed it below so you can read it. You can Download and print or email it in...