EDUCATION + RESEARCH + SUPPORT
No Lump… Still Cancer
Over $1.9 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
REGISTRATION IS NOW OPEN!
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
Shop the IBC Network Store and make a difference!
Every purchase supports inflammatory breast cancer research, advocacy, and education. Your shopping helps fuel hope, fund progress, and move us closer to a future where IBC is a disease of the past. Thank you for supporting the mission!
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
Italian? No problem! Sept 25,2012
Taking IBC to the Streets! We love hearing from you and how you are sharing IBC education in your community. Angela lives in the US, but planned a trip home to Rome. She wrote us and asked for supplies to take with her, shirts and materials printed in Italian... and...
The Other Side of the Ribbon
On this date, five years ago, I was told “Mrs. Arnold, we are sorry but it is most likely too late.” This came after four months of hearing “Mrs. Arnold, there is nothing seriously wrong”. What a jump, a mind stretching leap from “not to worry”, to “oh my,...
IBC Map of the World
The IBC map is a personal project of Terry Arnold. I started this map as a visual aid to show "rare does not mean never." This map has gotten the attention of media but also researchers and has been used as a reference in published papers on the need to launch more...