EDUCATION + RESEARCH + SUPPORT
No Lump… Still Cancer
Over $1.9 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
Shop the IBC Network Store and make a difference!
Every purchase supports inflammatory breast cancer research, advocacy, and education. Your shopping helps fuel hope, fund progress, and move us closer to a future where IBC is a disease of the past. Thank you for supporting the mission!
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
Open Letter to all who supported 2017® Ohio Hunt for Hope
Dear 2017 Hunt for Hope® Ohio Donors, We cannot thank you enough for donating to the 2017 Hunt for Hope®. We are humbled year after year at the amount of support we receive for the charity inspired by Lori. While the money is still trickling in, I thought I would...
Kiwana Thomas Gayden shares about her diagnosis with TN IBC
Update: When Kiwana shared this story in October of 2017, she was so full of hope. She was taken from us by this horrible disease on July 12, 2018. She personifies why this cause is so important. In November 2015 after a training run for an upcoming half marathon,...
The Perception of Awareness
A facebook post so raw and real, we had to share. Thank you Stephanie. So Pinktober is about to begin. I've been getting my inbox flooded with bras, purses, and other boobie nomenclature games. This is going to be a long post... I'm going to take a deep...

