Join us for the Ultimate
IBC Meet Up!
September 30 – October 2 | Nashville, TN
The Meet up begins in:
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There is a $25 registration fee to help offset event expenses. Hotel expenses are in addition to the registration fee.
Tentative schedule
Friday, September 30
1:30pm to 2:15pm Lab Tour at Vanderbilt
(The lab tour is fully booked at this time.)
Enjoy a private lab tour at Vanderbilt-Ingram Cancer Center led by Justin M. Balko, Pharm.D., Ph.D. See first hand how cancer researchers utilize funding from the IBC Network Foundation and others to perform cutting edge research to help find a cure for Inflammatory Breast Cancer.
Meet in the lobby of VICC/Preston Building located at 2220 Pierce Avenue Nashville, TN 37232. Attendees can park for free in South Garage located across the street. Unless a participant has physical challenges, they prefer participants not use the valet service due to the volume of VICC patients arriving for treatment.
Lab Tour Agenda:
1:00pm Meet in PRB lobby/escorted to 8th floor conference room
1:10 pm Welcome and Overview of the visit
1:20pm 1st group escorted to Justin’s lab for tour; 2nd group stays in conference room for presentation
1:30-1:50pm Lab Tour and Presentation
1:50-2:00pm 2nd group escorted to Justin’s lab; 1st group escorted back to conference room
2:00-2:20pm Lab tour and Presentation
2:30pm *Can either all meet in PRB lobby or all return back to conference room for closing remarks
2:45pm Finish – Attendees leave
5:00pm – 5:30pm Welcome Table
Stop by the Welcome Table to get your swag bag! Say hello to Amber Brooks who will be here to answer your questions.
6:00pm Dinner
Road to Hope – Keynote Speaker Jill Russell
Jill is an inflammatory breast cancer survivor and will share the story of her stage 4 diagnoses and lessons learned.
History and Milestones of Inflammatory Breast Cancer – Terry Arnold
Saturday, October 1
Please bring a mat if you have one, or we will provide one for you.
9:00am Continental Breakfast
10:00am Thriving Through Cancer: Discussion – Martha Van Dam, MS, LMHC, NCC
We will discuss mental/emotional skills to help women deal with their diagnosis, treatment and after, with a sense of thriving, not merely surviving.
11:00am – 11:30am Open Discussion
11:30am – 1:30pm Lunch break
1:30pm – Social Security Disability Discussion – Robin B. Fountain
Did you know that Inflammatory Breast Cancer (IBC) is on the Compassionate Allowance List, which qualifies an individual for an expedited approval process? However most patients are not aware of what benefits they might wish to request or how to go back to work, if able, post SSDI. Robin will walk you through the process via a recorded representation written especially for this meetup. There will be someone on hand at the event for in person questions and answer session.
2:30 – Break
2:45pm Represent IBC Wall and Pictures
3:45pm – Navigating Clinical Trials – Angela Alexander, PhD, Clinical Trial Coordinator
4:30pm – 5:00pm Line Dancing class!
Group or solo outings in the evening
Roberts Western World – early outing, bar food available.
BONUS
Throughout the day on Saturday, between events or during breaks, in an effort to pamper each IBC sister, Savannah Barrett will be offering complimentary hydrating lip treatments utilizing the Hydrafacial device, which works to deeply nourish, exfoliate, and restore dull, dehydrated lips and leaves them with a glowing, refreshed, and youthful look. It is a 5 minute experience and ideal for any skin types! (The only considerations are those highly prone to cold sores, and the recommendation is they take an oral prophylactic 48 hours prior to the service and will be fine).
Sunday, October 2
Sunday Oct 2, 2022 is the annual Jimmy Walk. The Jimmy Walk is an event to support patient services and research at Dana Farber. This year, the walk happens to land on the weekend of our Ultimate IBC Meet UP, so to show support for our IBC sisters in treatment at Dana Farber, we would like to encourage you to join in. The following is the link to the main page for the Jimmy Walk for Team IBC:
https://danafarber.jimmyfund.
If you wish to participate, you can sign up and walk virtually anywhere, or you can join Terry Arnold at the Nashville event to walk a short route near the hotel. If you do not wish to walk, you can join in by making your own fundraising page under the Team IBC or donate to Terry’s page or one of the teammate’s pages to support the IBC research at Dana Farber.
There will be plenty of other opportunities to connect with each other while on-site. From mixers and group activities (introvert and extrovert friendly) this event will be filled with moments of connection.
Registration is closed for the lab tour and Friday dinner. If you wish to join us for Saturday, we still have some room.
Where It’s At
The Inn at Opryland
2401 Music Valley Dr.
Nashville, TN 37214
Or you can call, Reservations Center at 1-800-901-4211.
Airport transportation: The most affordable way to get the hotel is uber or lyft and there will be shuttles for activities once at hotel.
The hotel has free parking and provides a complimentary shuttle. The shuttle makes a loop between the Inn at Opryland, the Gaylord Resort and the Opry Mills Mall and back. The shuttle begins at 7:50am until 7:00pm daily and runs every 30 minutes.