
EDUCATION + RESEARCH + SUPPORT
No Lump… STILL Cancer
Over $1.6 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
A working definition: Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
IBC Network Online Community
The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer
IBC Learning Academy
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
Introducing the UPDATED
IBC Network Foundation App!
This informative and interactive app has been updated and is available to anyone wanting to know more about Inflammatory Breast Cancer.
Symptoms, diagnosis, and treatment of IBC
Latest inflammatory breast cancer news
Information and updates on clinical trials
Updated events at your fingertips


ARTICLES
A Letter to My Kids
Terry Arnold, Founder of The IBC Network Foundation, wrote a note to her kids that we wanted to share here: I wanted to send this out because it's almost time for open enrollment. You may have an option to get an additional cancer policy on top of your medical...
Dealing With Holiday Stress and IBC
Guest Blog by Martha Van Dam, MS, LMHC, NCC Holidays can be times of excitement and happiness, but they can also be times of extra stress and pressure, especially when dealing with cancer or recovering from cancer. Please take care of yourself during this busy time...
Simple Mastectomy or Modified Radical Mastectomy for Stage 4 IBC
There is ongoing discussion regarding the role of modified radical mastectomy (MRM) in patients with de novo stage IV inflammatory breast cancer (IBC). Terry Arnold, founder of The IBC Network Foundation reached out to Dr. Anthony Lucci, the leading IBC expert on...