EDUCATION + RESEARCH + SUPPORT
No Lump… STILL Cancer
Over $1.7 million donated to inflammatory breast cancer research by The IBC Network Foundation.
We also attend research meetings, serve on grant committee’s, advocate, educate and run online support groups, just to list a few ways we spend our time.
However, we are intensely focused on funding high quality research, because we feel research matters.
What is IBC?
Inflammatory Breast Cancer (IBC) is a rare and very aggressive disease in which cancer cells block lymph vessels in the skin of the breast.
This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”.
OUR MISSION:
- To fund research regarding Inflammatory Breast Cancer.
- To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
It is important to know how your donation is utilized. The IBC Network Foundation existence is to fund research to eradicate this disease. We are a 501c3.
Symptoms, Facts & Statistics
Inflammatory breast cancer defined, read the symptoms IBC may include and discover the facts and stats about IBC you need to know.
Treatment Centers
Just like IBC presents differently and has different diagnosis needs, the standard of care is different from general forms of breast cancer. Due to the rarity of the disease, IBC diagnosis and treatment is not commonly taught in medical or nursing schools.
IBC Network Online Community
The IBC Network Online Community is the support group that was started on Facebook by Terry Lynn Arnold. It is for those who have been impacted by inflammatory breast cancer.
IBC LEARNING ACADEMY
The IBC Learning Academy is a rigorous course with the objective of training devoted Inflammatory Breast Cancer advocates. Trained advocates will be empowered to promote the unique needs of IBC patients by improving access to specialty care, increasing education around clinical trials, and participating in lobbying.
TALK IBC PODCAST
The Talk IBC Podcast is where we will discuss things related to inflammatory breast cancer, from patient’s personal stories to the latest in research. A new episode will be released every two weeks as Terry Arnold interviews new guests.
Walking on Quicksand Magazine
Walking on Quicksand is an online magazine that shows that life persists post-diagnosis. This is a place to showcase the fullness of ourselves, beyond the label of a person who lived with or during the time they lived with cancer. We are now accepting article submissions.
The mission of the IBC Network Foundation is dedicated specifically to fund medical research for inflammatory breast cancer.
The following graphic reflects why our mission is so needed.
This shows breast cancer grants over the last 20 years. *
ARTICLES
Shareen’s Story of Hope
At the age of 42, in 2023, Shareen received the life-altering diagnosis of Inflammatory Breast Cancer (IBC), here is her story: Four weeks into a new job, I'd been having pains in my breast which I put down to perimenopause symptoms. After my right breast began to...
Pamela’s Story of Hope
Guest blog by Pamela Collins My name is Pamela Collins. I live outside Springfield, Missouri, in a rural area close to a major city. In 2013, I was diagnosed with Inflammatory Breast Cancer. I am sharing my story of hope. I was 53 years old at diagnosis, in good...
Tiffanny’s Story of Hope
Guest blog post by Tiffanny December 21, 2016 Yes you guessed it! "You have cancer" head spinning , heart pounding, my entire life spinning out of control! After only 3-4 appointments, 3-4 diagnosis, 3-4 prescriptions, and me demanding a punch biopsy because of what...
