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On September 09, 2013 someone wrote me and commented on how hard it must’ve been for me when Lori died since she and I were so close.

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Terry Arnold & Lori Grennan, the only picture I have of us together,.  I treasure it.

Terry Arnold & Lori Grennan, the only picture I have of us together, I treasure it.

I told him it was difficult, but unfortunately Lori is not the first friend I had lost to IBC.

I told him I’ve met thousands of women online diagnosed with this disease.

And that I have lost count of how many hundreds I have met in person.

And I have lost count of how many have died.

But I have not lost count of how many I knew personally to have died.

17

I have known 17 women who have been taken by IBC.

Youngest was only 27.

I could tell my friend was really taken aback…. He just stuttered…

 …sometimes I envy the lack of experience others have with this disease.

Today, September 11, 2013, the number is now 18.

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Sharon, peace to you and your family.

Sharon, peace to you and your family.

Peace to you Sharon, I miss you already.

I will hope, but tonight, through my tears,

Terry

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